The following links & resources were during a GAPSBiF meeting by Dr. Jonathan Castillo and Team:
1. "These 6 educational videos will highlight key timelines for health care transition (HCT) from pediatric to adult-focused health care, and strengthen collaboration and coordination between clinicians, specifically for youth and young adults with spina bifida. Building on other efforts to support the HCT process, the videos will also aim to emphasize the needs of individuals with spina bifida and address support for cognitive and physical challenges which could impact self-management and quality of life."
www.aap.org
2. "AAP Voices Blog:" "Helping Those with Spina Bifida Make Developmentally Appropriate Transition to Adult Care."
www.aap.org
3. "Professional Tools & Resources"
https://www.aap.org/en/patient-care/spina-bifida/professional-tools-resources/
4. "Helping Teens Transition to Adult Centered Care"
https://www.healthychildren.org/English/family-life/health-management/Pages/Spina-Bifida-Helping-Teens-Transition-to-Adult-Centered-Care.aspx?_gl=1*de7stj*_ga*ODI0MzM1MTc4LjE2OTExNzk3NTE.*_ga_FD9D3XZVQQ*MTcwNTY4NjY1NC4xMi4xLjE3MDU2ODY4MjkuMC4wLjA.
1. "These 6 educational videos will highlight key timelines for health care transition (HCT) from pediatric to adult-focused health care, and strengthen collaboration and coordination between clinicians, specifically for youth and young adults with spina bifida. Building on other efforts to support the HCT process, the videos will also aim to emphasize the needs of individuals with spina bifida and address support for cognitive and physical challenges which could impact self-management and quality of life."
Health Care Transition Support Videos for People Impacted by Spina Bifida
These 6 educational videos will highlight key timelines for health care transition (HCT) from pediatric to adult-focused health care, and strengthen collaboration and coordination between clinicians, specifically for youth and young adults with spina bifida.
www.aap.org
2. "AAP Voices Blog:" "Helping Those with Spina Bifida Make Developmentally Appropriate Transition to Adult Care."
Helping Those with Spina Bifida Make Developmentally Appropriate Transition to Adult Care
Patients and their families can benefit greatly from early and consistent help and guidance from health professionals as they navigate this change.
www.aap.org
3. "Professional Tools & Resources"
https://www.aap.org/en/patient-care/spina-bifida/professional-tools-resources/
4. "Helping Teens Transition to Adult Centered Care"
https://www.healthychildren.org/English/family-life/health-management/Pages/Spina-Bifida-Helping-Teens-Transition-to-Adult-Centered-Care.aspx?_gl=1*de7stj*_ga*ODI0MzM1MTc4LjE2OTExNzk3NTE.*_ga_FD9D3XZVQQ*MTcwNTY4NjY1NC4xMi4xLjE3MDU2ODY4MjkuMC4wLjA.
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